Evening Update from Mark-Wednesday

Kaiya is sleeping right now in her crib. (Yes, she is no longer in a big bed but in a crib her size.) Still in the ICU, closer and closer to moving to the regular pediatric floor.

Although today was somewhat stressful for both of us, there were several positive things that happened:

*Heidi was able to successfully feed Kaiya a few times.

*EEG results did not show any seizure/stroke activity, the jerky movements seem to be a result of coming down off of the heavy meds she has been on for the past 5 days. Dr explained that it is similar to a drug addict coming down in detox. She is currently on valuim (sp?) to calm her nerves. Perhaps I can sell them on giving me a dose???

*The throwing up of stomach bile seems to have subsided.

*Eye doctor visited today to look at Kaiya's eye. Gave her some eye drops to dilate the pupils so he could get a look at what was going on deep in the retina. (This may be skewed, so sorry if my interpretation is not accurate.) He had some glasses that allowed him to look deep into her eye almost to her brain. His diagnosis was that due to the heavy inflammation in her head/brain, she is suffering from cerebral vasculitis. He says that this inflammation will subside eventually, and chances of improvement are positive. Can't say HOW MUCH it will improve, but he feels that it will get better than the current condition, which we are thankful for. Says it will be a long recovery.

Please continue to pray for:

*Left eye/left side of her face.

*Enough progress to get us out of the ICU.

*Patience as we wait for physical healing. We are first and foremost thankful that Kaiya's life was spared. It is very difficult, however, for both of us to see Kaiya in continued pain/struggle with the movement in her face & eye.

*A peaceful night.

Can't thank everyone enough for the continued support. Very meaningful to us, words can't express.

Mark