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Monday, December 15, 2008

MRI

MRI results were basically the same as the first time...with a little more fluid than there was originally. Haven't heard from the ped. neurosurgeon yet who ordered the test, so I'm not sure what that means in terms of needing it drained. Hopefully that won't happen.

Thanks to those of you who asked about her eye-it's EXACTLY the same. Not responsive, blown pupil, etc. There is much talk about it being related to the 3rd cranial nerve. I don't know what the heck that is-but there is a specific title you can pray for. :)

Big huge thanks to my friend Kara for organizing lunches and dinners for us at the hospital for the rest of the week..and the Grand Rapids people who responded to her "ad" on this site to help. We so appreciate it!

Thanks for sticking with us. I know it's easy to get wrapped up the first few days and then (because I'm guilty of this myself)-get back to life. I feel like we have continued support through each of you and I can't thank you enough.

5 comments:

Anonymous

So much love going out to you from Jim and I. I wish I could be there to help. It sounds like you are getting lots of support. Keep posting. Your extended family loves being updated regularly.

Anonymous

We found this information today on Wikipedia:
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"Blown pupil" is an informal medical term used by physicians and nurses to refer to pupillary dilation and loss of ability to constrict in response to light.

Pupillary dilation (mydriasis) indicates impairment in the nervous system that could reflect compression or distortion of the oculomotor nerve by either primary injury or herniation. The classic fixed and dilated "blown pupil" is a unilateral phenomenon that may occur when an intracranial mass is compressing cranial nerve III.
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Heidi and Mark, As far as I can tell, the eye problem is caused by the nerve problem which is caused by fluid retention. I saw nothing that indicated that it is not reversible with proper treatment, which I'm sure Kaiya is getting.

Margaret and I add our love to that of the big family you have around you.
Cousin David

Jennifer

I'm a friend of Katie in Spring - wanted you to know my prayers are also with you.

Jennifer

Anonymous

Dear Heidi & Mark,

We are so sorry for little Kaiya and both of you. Inants like Kaiya are so precious and vulnerable. It hurt us deeply when they hurt. We have kept up on Kaiya's situation by reading your blog. We just learned how to post comments. Our prayers have been and will continue to be for complete healing. Our love to you,
Gene & Judy

Elizabeth

You have been on my mind and in my prayers today. Praying you both rest tonight and the Lord keeps you healthy.

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