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More good things about today:
1)Kaiya has had the same nurses the last 3 shifts and they have figured out how much I love Diet Coke and keep me supplied. (and take REALLY good care of her, too :))
2)I got to eat peanut butter and jelly and chicken strips.
3)My sweet girl is still here with me...the more I hear about the severity of her condition upon our initial arrival, the more I realize what a gift that is.
Prayer Issues:
1)Her lungs. They turned the ventilator down and she has not tolerated it quite perfectly. Her labs have been a little off and so this delays the removal of the nasty tube from her. Praying against pneumonia. Dr. said probably some air sacs have collapsed. I really want the ventilator gone because then I can hold her.
2)Her eye. You already know all about that.
3)That Ava (who is being so well cared for and loved by my sister and her family, an amazing gift and weight off my shoulders) will be resilient and not too sad during the next still almost 2 weeks of upheaval. The best case scenario at this point would be getting discharged on Christmas Day. That's a long time to try and mommy two girls in different places! I need wisdom on how to love Ava most and upset her the least.
Mark went home tonight because, well, let's just call a spade a spade. We are not the skinniest people in town and that vinyl smaller than a twin bed pull out thin blanket chair just isn't the best for us. He didn't want to leave. He is such an amazing Dad and has totally rallied through this. I am thankful the Lord has kept us on the same team. I think it's easy in crises with children struggling to struggle with each other. I still think he's the best. :)
Thank you my sweet friends whom I know and don't know. I am thankful for your part of our story..it wouldn't be the same story without you.
Sunday, December 14, 2008
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10 comments:
This is Gordon's cousin David posting anonymously. We just heard this evening that Kaiya has been in the hospital for the past several days, came to your website, and read all the messages. It sounds like the trend is in the right direction. You will be in our thoughts and prayers over the next several days as her recovery progresses. I know you look forward to holding Kaiya in your arms again, and we trust that day will come very soon. We'll stay in touch with your website as the days go by.
just got caught up on everything! wow!!! praying for you and kaiya!!!!!!!!!!! girl!!! hang in there!!!!!! i love you! keep the blogs up
So happy to hear some positive news! I am praying for wisdom for you and Mark as you continue to deal with all of this and figure out how to make Ava feel comfortable with your absence. I will also continue to pray for peace, which you seem to have and that is awesome. I too really struggle with the part of that song says "he gives and takes away", and I've had a particularly hard time with it this fall. I too needed to learn how to choose to say blessed be His name, and I agree that it's a hard but very necessary (and ongoing) lesson. Thank you so much for your honesty in sharing this experience! I wish there was something else we could do to help you guys, but we will continue to pray and pray. Love to all of you!
I am a friend of Melissa Parsons and have been following your blogs since they started. We are praying for Kaiya and His quick & complete healing of her. May He renew your strength as you abide in His sovereign peace.
Rachel Honeyman
Jer. 29:11
oh heidi...i'm so sorry you're going through this. praying hard for your precious babygirl!!!
Heeeidiii...oh, momma. You are such a sweet momma...the sweetest. I wish I could be there to sit by you and pray with you. I'll be praying here (sometimes through tears as this hits soooo close to home) for Ava, Kaiya and you guys and I'll be reading your very well written blog. I love you.
Heidi...when my "baby" girl of 17 was diagnosed with a serious illness, this is the first verse the Lord gave me. "I am still confident of this; I will see the goodness of the Lord in the land of the living. Wait for the Lord, be strong and take heart and wait for the Lord." Ps. 27:13
Praying that you will not only see His goodness but feel His goodness and that Kaiya will be completely healed! Much love, Renee Keller
Heidi, wanted to let you know Brian and I are praying for you guys. God can works miracles and that's what I am asking for... may you find peace, comfort & strength in the One who gave life to Kaiya. Our thoughts are with you!
Brian & Trish
Heidi,
I don't think we have ever met but I am a TU grad, a few years younger than Mark but remember him from Youth Conference...I came across your blog a few months ago and am now thankful for the chance to be part of your prayer community at this time. We too live in West MI and I know how great the medical care available in our area is. you are being covered!
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